2.25.2009
Posted by Posted by
summer phillips
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8:13 PM
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cole,
eli,
eyes
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2.16.2009
cole, eli and I spent the weekend in bartlesville visiting my family...we missed brent but it was nice to get away and catch our breath. cole's eye continues to look better...he keeps it open about half way now and the skin around his eye is back to normal. we will see the dr on tuesday and hopefully the redness and inflammation will be clear and we will be able to set a date for the cataract surgery...we are hoping for early march.
cole's spirits are good, i think he understands as much as possible what is going on. he and i have talked about how it's kind of like God is patching his right eye right now so that his left eye can get stronger. they tested the vision in his left eye on tuesday and it is already showing improvement:) i have explained the cataract to him by telling him that the lens in his eye was like a wind shield and that it is really dirty right now and that's why he can't see through it. he knows that during surgery the dr's are going to clean it by giving him a new lens. at first mr logical thought he was going to get a whole new eye but i told him no, when the wind shield on your car is broken you don't get a whole new car, you just get a new wind shield. then he wanted me to show him on eli where exactly his lens was and i was all out of analogies :) cole said the other day that he used to only see out of his right eye and now he only sees out of his left eye and that he wonders what it will be like to see out of both eyes, followed by "it's a good thing that God gave us two eyes, in case one doesn't work" :) school has also been going well for him, he has enjoyed being back. his teacher said this about him in an email to me this week, "Cole is having a good day. He has been in good spirits and working hard on his work. He is such a trooper! He doesn't complain about anything and just keeps plugging away!"
please continue to pray for our sweet boy...some specific things to pray for are: the inflammation to clear, that we will be able to set the cataract surgery date asap, that there was no damage to his retina and that his left eye continues to get stronger. THANK YOU so much for keeping us in your prayers :)
Posted by Posted by
summer phillips
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12:08 AM
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2.09.2009
Blessed are the weak
Blessed are the ones
Who can barely speak
Blessed in your hurt
Blessed when you’re broken
Blessed when you’re blind
Blessed when you’re fragile
When you have lost your mind
Blessed when you’re desperate
Blessed when you’re scared
Blessed when you’re lonely
Blessed when you’ve failed
Blessed when you’re beat up
Blessed when you’re bruised
Blessed when you’re tore down
Blessed when you’re used
These are words to build a life on
These are Your words how can they be mine
These are words to build a life on
These are Your words I want them to be mine
Blessed when you’re heartbroke
Blessed when you’re fired
Blessed when you’re choked up
Blessed when you’re tired
Blessed when the plans
That you so carefully laid
End up in the junkyard
With all the trash you made
Blessed when you feel like
Giving up the ghost
Blessed when your loved ones
Are the ones who hurt you most
Blessed when you lose your
Own identity
Then blessed when you find it
And it has been redeemed
Blessed when you see what
Your friends can never be
Blessed with your eyes closed
Then blessed you see Me
These are words to build a life on
These are Your words how can they be mine
These are words to build a life on
These are Your words I want them to be mine
Blessed when you’re hungry
Blessed when you thirst
Cause that’s when you will eat of
The bread that matters most
Blessed when you’re put down
Because of me you’re dissed
Because of me you’re kicked out
They take you off their list
You know you’re on the mark
You know you’ve got it right
You are to be My salt
You are to be My light
So bring out all the flavor
In the feast of this My world
And light up all the colors
Let the banner be unfurled
Shout it from the rooftops
Let the trumpets ring
Sing your freaking lungs out
Jesus Christ is King!
Jesus is my Savior
Jesus is divine
Jesus is my answer
Jesus is my life
These are words to build a life on
These are Your words how can they be mine
These are words to build a life on
These are Your words I want them to be mine
Give us ears that we may hear them
voice that we may sing them
life that we may live them
hope that we may give them
hearts that we can feel them
eyes that we can see them
thoughts that we may think them
tongues that we may speak
Your words
Posted by Posted by
summer phillips
at
3:24 PM
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2.07.2009
the dr appointment went well yesterday. cole continues to do very well in his exams....we are so proud of him. the dr tells us that things are continuing to clear up and they can now tell that he for sure has a cataract in his right eye so that is one reason cole is not able to see out of that eye. they will not be able to see if there is any retina damage until cole has the operation to remove the cataract and they want to wait three to five weeks until the inflammation is completely gone and the eye is totally healed before we do it. they will also be monitoring his glaucoma pressures to determine when to put in the tube/shunt.
the dr says "wait and see" and i say "great! no problem, if you can guarantee the see part" which, of coarse, he can not do...so really it's just wait and that is hard. as much as i want to, i can not make myself be patient. in fact, i find the definition of patient to be impossible and i'd love to know if the person who defined the word was actually able to practice it. what kicks my booty is the fact that i actually know the person who defined patience, i know He's able to practice it, He wants show me how, and [oh the irony] He is actually being patient with me at this very moment!
right now we have to help cole see the best he can with what he's got. so for the time being, cole is officially low vision or visually impaired. we needed this label so that he qualifies to receive the help he needs at school. this next week he will meet with the district's visual impairment specialist and they will determine what modifications will need to be made at school. we will also probably have him evaluated at the children's center for the visually impaired. they specialize in helping kids do the most with the vision they have. we are really blessed to have such and amazing resource right here in kc!
thank you all so much for keeping us in your prayers, for the many gifts, the phone calls to say you care and the yummy meals. the encouragement and support you have given us has been amazing and we could not have made it this far without your help. so thank you thank you thank you.
Posted by Posted by
summer phillips
at
1:49 PM
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2.04.2009
cole is continuing to improve, he is opening his right eye more and more each day. we saw the dr. yesterday and he thinks the infection is all gone out of his inner eye and only the inflammation remains. cole is still not seeing out of his right eye and we will not know why until the inflammation clears up. we will see the dr again on friday morning and we are hopeful that the inflammation will be cleared up enough so that they can tell what is causing him not to see. in the mean time cole is enjoying playing marbles with granny and his new Nintendo ds without a cracked screen from nonnie. cole gets to go back to school on monday and he is very excited about that! brent and i continue to remain hopeful that the vision will return to his right eye but we are also trying to make arrangements for his needs at school in the mean time. please pray for us as we navigate these uncharted waters with the eye dr's and the school.
today the weight of all this could not be avoided any longer. it is hard to let myself feel this because i get so easily overwhelmed. my gut instinct for problems that are too overwhelming to fix is to work around them, or avoid them all together...i can not, however, think of a way to avoid or work around this problem... so, i guess the time has come for me to figure out a new game plan. i must be difficult to teach because God usually has to create scenarios like this where i can't dodge the reality in order to move me. He has to take me to places where i am at the end of myself in order to rely solely on Him. it feels uncomfortable in this place but i know that as i let myself feel and live here, the peace and comfort will come.
Posted by Posted by
summer phillips
at
7:59 PM
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cole,
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2.02.2009
we got to bring cole home today! he did an awesome job this morning and let the dr get a good look in his eye so we didn't have to do an exam under anesthesia! the skin around his eye still looks pretty bad but the infection inside of his eye seems to be clearing up.
we will be going a couple more times this week to the dr to make sure everything continues to improve. once everything is healed he will for sure need to get a tube/shunt implant put in his right eye to control the glaucoma. he is still not able to see anything out of his right eye, this could be because of debris behind his lens from the infection or he could be forming a cataract. it is too early to tell exactly what is causing him to not be able to see but they are still hopeful that his retina was not damaged.
cole has really been amazing through all of this, he has not been worried or angry, he has hardly even cried. he was the most worried about the iv! today he said that he was "excited to go home and start his new life." i asked him what he meant by his new life and he said "mom, you know, my new way of seeing!" he amazes me.
he has to stay home from school this week per dr's orders so we will spend this week trying to figure out what kind of help he will need at school while his right eye is not working. it will be a learning process for both of us! thanks so much for praying :)
Posted by Posted by
summer phillips
at
10:42 PM
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cole,
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2.01.2009
here is a pic of coler taken today. as you can see his eye is still pretty red and irritated. he is still not opening it very much. the dr saw him briefly today and said that he thought cole was looking a little bit better. he wants cole to be seen in the opthamology clinic in the morning and if they can't get a good enough look they will do an exam under anesthesia tomorrow afternoon. during the exam they will determine weather he looks good enough to go home or if not they will give him another interocular injection of the antibiotics. so...if everything looks good we will be going home tomorrow or tuesday. If they have to give him another injection it will be a few more days. cole was in good spirits today and was awake alot more. he is using his left eye to see with and getting around pretty well so that is a blessing. we still have a long road ahead of us but so far so good. thanks for keeping us in your prayers.
Posted by Posted by
summer phillips
at
8:29 PM
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cole,
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