3.31.2009


we are going to try dr trese in michigan first.  dr trese has been out of the country but cole's info should be in front of him today.  we are hoping to hear something today or tomorrow on when we will be making the trip to detroit.  if there is just no way that dr trese can see cole in the next 3 weeks we will likely go back to the duke eye center to see the retina specialist there but i will keep you posted.  
in the mean time cole is looking forward to his 7th birthday on april 16.  we don't want the surgery to interrupt his birthday plans so we are holding off on his party until we know our travel plans!  cole is doing pretty good but this is hard on him.  he is having the most trouble with the light sensitivity.  any amount of light indoors and outdoors makes it very hard for him function.  he is wearing a hat and sunglasses but says they don't help that much.  i have found a place on line that sells glasses in kid sizes with about 50 different lens options to help with light sensitivity while still allowing him to focus and see color contrast.  they are sending us three different colors for him to try in varying degrees of light blockage so he can have one for indoors and one for outdoors in the color that is most helpful to him.  we are both excited to give these a try and see if they can help him!    
it seems that every time we go to the eye dr i come home feeling down.  i think the longer this goes on it is becoming more difficult for me to hold onto hope that cole's vision will return to his right eye. i know that there is always hope, even when every one else tells you there isn't. i just like to be prepared for the worst because then i think i can some how handle it better, but as dr phil likes to ask "how's that working for ya?" not so well i'm afraid.  being prepared for the worst mostly just makes me sad all the time and that is not helpful to anyone.  so please continue to pray for us that our hope would be restored, that we'd have peace and joy during this time, that the glasses will be helpful to cole, that we'd get to schedule the next surgery soon and with the best dr for the job. thank you thank you thank you :)      

Posted by Posted by summer phillips at 12:39 PM
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